Sunday, May 2, 2010

The Hardest Part Of Being Sick..

Is when you get hit with something else on top of what you already have. The layers are the hard part. Right now I have what seems like a sinus infection, a sore throat, a fever, am spewing colorful mucus and I am coughing like a seal with a nice barking hack that wakes me up when I try and sleep and I am sick and tired of being sick and tired. How is that for a run on sentence?

Lyme disease and co-infections alone and chronic fatigue syndrome are bad enough but when you get hit with a bug you go down fast and don't get up easily... When you live alone you wonder who is going to save you when you run out of paper products and are too sick to cook. Luckily my kind friend who I met in our now defunct local small town Lyme disease support group is going to bring me some paper products tomorrow. Thank God or I really don't know what I would do. Paper towels really don't work for TP or Kleenex.

I really feel like death warmed over and for the last three days have been forced to spend 98% of my time in bed. I know I am living in a rental with a high mold count and am in the process of taking care of the mold not that my landlords are any help they have only been part of the problem by not taking care of links in a timely manner and excuse me if I am playing the victim care for a moment but I am really not feeling well and it is not that easy moving when you don't have an income due to ill health.

Today when I really thought things could not get any worse and was having thoughts about dying from this current virus my landlord started weed whacking - not exactly healing. When he got done with that he then rode around the property on some noisy mower that resembles a tractor making even more noise. We have a giant lawn here so it went on forever or for what seemed like it. Good thing I hate guns and don't keep one. I might have had a hard time deciding if I should shoot the tires out on the mower or myself. When I get super sick I always feel like I will never get well again and like the world is coming to an end.

This disease sucks and people who don't have don't understand. I know people mean well when they say you look good but it is not really that helpful. If you don't have Lyme disease you have no idea what people with Lyme disease go through on a daily basis and how each time we catch a nasty bug that might have you down for two days we go down for eight and wonder if this might be the bug that kills us. We don't have normal immune systems.

What started to really scare me was the fact the practitioner who I am working with did not seem to be answering my desperate pleas for help. Thankfully she got back to me today. Not hearing from her was really adding to my stress level.

Thanks for listening to my whine and rant and I am now heading back to bed.

Monday, April 19, 2010

Lyme Disease Coinfections Anxiety & Panic Attacks - Oh My!!!


During my stay in Lymeville and my constant attempted journey out of Lymeville I have had varying degrees of anxiety at times from almost 5 months straight of horrific non stop panic attacks and living hell where I was afraid to leave my home and wanted to jump out of my skin and run down the block to just a slight uneasy feeling.


Before I found a bulls eye rash on my leg many moons ago I never had any major anxiety to speak of. Thanks to ticks and bioweapons that has all changed. Anyone who has Lyme disease co-infections and major neuro symptoms with anxiety and panic attacks knows unfortunately just the kind of horrendous anxiety I am talking about.


I was asked by other people dealing with Lyme disease what supplements have helped me deal with anxiety. To be honest with you at times in the past nothing I tried helped me. Perhaps because my body was so depleted at the time or my neuro symptoms so severe that there was no quick fix or if there was I did not know at the time what would help. I might have been too acidic at the time and did not know it. I was still undiagnosed with Lyme and cos when my anxiety first developed.


Some supplements at different times have helped me so I will list them in the hopes they can help others.


Stress X by Biogenesis


It comes in a blue plastic bottle. Another company makes something with the same name yet their product is different so look for the blue plastic bottle when purchasing. You can find it online. Taking one or two of these capsules sometimes works amazing well to just nip the feeling of anxiety in the bud. You can take it during the day and it won’t knock you out or make you feel sleepy yet two caps at night will help me sleep better often and if I have a cold sometimes I will wake up without the cold symptoms after taking 2 caps. This is the product that I first grab for when feeling the return of anxious feelings.


Ele-Max by Integrative Therapies, Inc. 


I was given this supplement by an amazing homeopath/MD. I feel this supplement can and does sometimes improve anxiety and depression. It helps me with improving brain chemistry. It may not work for you over night yet if taken every morning it may help you to improve your brain chemistry in the long run. A good supplement to discuss with your health care practitioner.


I also take various cell salts (mild homeopathic minerals that melt under the tongue in a 6x dosage). You can google biochemic cell salts and read more information about them. There are 12 different types of cells salts in all. Sometimes mag phos helps me with anxiety at other times ferrum phos and sometimes kali phos depending on what mineral my body is low on. Hylands sells a combo of all the soothing cells salts that end in the word phos together in a product called Nerve Tonic. You can also find the same combo of cell salts by Hylands under the name Biochemic Phosphates. I take six tabs of the Nerve Tonic at one time


There is a very good and easy to follow book on cell salts called Natures 12 Magic Healers. This book at times has been my life saver. I have had the same dog eared book for years. I refer to it often and it is like my health bible. My copy is heavily highlighted with many notes scribbled in the back. Weeks ago a fellow Lyme sufferer asked to borrow my copy along with some other books like Healing Lyme. So far have he has refused to return them. You might say he is on a bit of an obnoxious control trip which can’t be good for anyone’s healing. Talk about bad karma it is like stealing a medicine bag from a medicine woman so hey there Mr. Potato Head just keep hanging on to my cell salt book and see what that does for you. As Dr. Phil would say “How is that working out for you?” Of course being a Malibu-ddhist does not make one enlightened over night and Mr. Potato Head grew up in the land of confusion and seems to enjoy parking his arse in that state. Annoying - yep a little!


You might also try experimenting with Rescue Remedy by Bach or other flower essences and see what works for you.


Some people have reported good results by using Kava Kava.


If die off might be causing your anxiety. It can make your pH too acidic which in turn can cause anxiety. Adding six boxes of baking soda to a bath is said to be very helpful or taking a teaspoon of baking soda in a glass of water to alkalize or taking Alka-Seltzer Gold will do the same thing. Drinking lemon water is said to help with pH balance and a herx as well.


Binders might be helpful as well to try to bind the toxins from the die off out of your body which in turn might lesson your anxiety if it is due to the die off or being too acid rather than alkaline . 


Charcoal or green clay are just two of the different binders that might be helpful. You can ask your health care practitioner the best way to take binders and which ones to take for your body and situation. Always take binders at least 2 to 4 hours away from other meds or supplements.


I would love to hear from other people with Lyme & Cos what works for their anxiety.


I have recently added a donation button to my blog. If you have learned anything from my blog or enjoyed reading my blog & feel so inspired please donate. Any size donation is welcome & can help me with the cost of supplements & will be greatly appreciated. I would love to say I am thriving financially. Instead I will say after going undiagnosed for years & then after having to pay 99% of my costly treatment out of pocket right now any & all donations would be greatly appreciated.


Another super easy way to help me financially is to use my Amazon link when purchasing anything from Amazon. It is located on the upper right hand side of this page. There are no extra charges when you use it. Also please ask your friends & family to use my Amazon link as well. I appreciate your support!!    

Monday, April 12, 2010

Lost In The Ozone Again.

It has been a long time since I last blogged. Basically I felt much better after treating with the Bionic 880 in Germany. I came home looking much better or at least that is what people were telling me and then I crashed ten days after arriving home. I did not purchase a Bionic 880 in Germany because I did not have an extra $8,000 to spare. I did like the treatment and protocol in Germany yet it seems that some of the other people who were staying in the guest house when I was in Dobel treating crashed when they arrived home as well. I do not think the Bionic 880 treatment in Germany is a cure for Lyme disease. It is more of a stepping stone to assist one in getting better than a "cure". I did find it helpful and even my Tibetan MD thinks the treatment did knock down my Lyme disease load somewhat.

I thought when I arrived home I could use my chiropractors Bionic 880 to treat with but that turned out to be not as easy as I thought it would be. His office is almost 2 hours away and I did try driving there for awhile to use his Bionic 880 once a month but the treatment did not seem to be as good for some reason as the one in Germany. Maybe because the MD in Germany has "live" nosodes and does detox IVs and ozone IVs afterwards? I never did get a chance when I returned to the USA to treat with my own blood or salvia in a nosode and still would like to do that sometime. When I have some extra money at some point I would like to return to Germany for more treatment if I am not feeling much better by then. Currently I am still dealing with fatigue and lack of stamina. Perhaps at some point I will purchase a PE1 which is said to be like a Bionic 880. The price of the PE1 is much more affordable than the Bionic 880.

I also did 4 ozone IVs this last Feb. along with some detox IV's containing magnesium, bicarbonate of soda and some homeopathics in an attempt to try and duplicate the detox IVs I had received in Germany. The way my ND did the ozone IVs here was different than the doctor did in Germany and I feel the German ozone IVs were more effective.

I do not know for certain why I crashed after returning from Germany. I suspect it could be due to mold in my rental or because I have not treated KPU/HPU yet or perhaps due to the fact that when you leave Germany the MD tells you you still have Lyme disease and co-infections in your body that he has managed to change the frequency of the Lyme disease so it won't bother you and perhaps some cos but if you become stressed the diseases will return. Maybe my disease loads were not knocked down enough and so their levels climbed back up? I felt good on the flight home but a long flight can be stressful and the oxygen levels on flights are not the best. Maybe I crashed on my return for all the the above reasons and perhaps some hidden ones.

Right now I am working with a practitioner who sends me remote frequencies from a biofeedback machine the same way one would from a Rife machine. She utilizes my DNA to do so. She believes the diseases returned because they were not knocked out all the way down to zero. She currently thinks my Babesia is gone. Lets hope so. It is hard for me to actually measure if it is really gone. Hearing it is gone does sound good. Two years of malaria meds did not seem to put a dent in it and it was still active even after my treatment in Germany according to the MD there.

I plan to work on the mold in my home next. My practitioner has had success lately helping other people rid their homes of mold with the use of frequencies after they gave her a mold sample to work with. I am in the process of getting a mold sample to her along with photos she needs of the outside of my apartment. When she did my DNA testing when I first started working with her my environmental mold levels came up as being even more of a issue for my body than even Lyme disease.

I believe as Dr. Klinghardt does that environmental mold is often a big issue for Lyme patients. I have also noticed humans for some reason can't face the fact they have mold issues in their home and often go into denial over mold issues. I have done that myself and find mold hard to deal with. I know I have mold in my rental and have dark and multi colored mold growing on a petri dish right now. Trying to find a mold free well maintained rental in Northern California where there has been no prior water damage is not always easy. Most homes have had some sort of water damage or leak at some point and most rentals in my area are not very new or kept up well. For now I think I will work with the rental I have.

Friday, July 10, 2009

Back Home & Feeling Better!

I did my 6th treatment which I will write more about later. I flew home (11 hours) after an hour Ice train ride to get to the Frankfurt airport. Taking the train to the airport was very easy. Karin Klein the kind and wonderful owner of the guest house in Dobel took me to the train station and made sure I boarded the right train. Both she and my treatment buddy saw me off and I left in tears. I have some very fond memories of Germany. I felt okay on the flight unlike my old sick self that would always start to feel ill from flying even on short flights. Always when I did fly I would be forced to spend the next day in bed. I am feeling good at the moment compared to how I was feeling before Germany. I forgot to take any Melatonin on the flight home and am having jet lag and going to sleep at strange hours and waking up at 3:00 a.m. to start my day. 

It feels good to be feeling better and to be home in my own space. I still have more work to do and co-infections to continue to deal with and more detoxing to do. I am happy that my kidney feels more normal at the moment rather than its sometimes burnt out sluggish uncomfortable tight state of feeling before treatment and my digestion improved with Bionic 880 treatment and my fatigue issues have improved some as well. I would not say I am cured but I am feeling better than I was before treatment and I am very grateful and thrilled about my improvements. 

I went to a yoga class today at 7:30. a.m. It was too advanced for me so I did not do all of it yet I was happy I could do more of it then right before I left for Germany. 


Sunday, July 5, 2009

Tomorrow is My Sixth Treatment

On the day of the sixth or last treatment Dr. Woitzel tests the patient to see how well their borellia  load has been reduced with the help of the treatment. I believe he tests the patient with the use of his Bicom 2000. I will find out for sure tomorrow how he does the testing. I am curious to find out if I will be done with my treatment in Germany or if I will need to stay here a bit longer to treat before returning home. 

I took a long walk tonight and noticed I had plenty of energy and felt like I could walk forever. Was it just a gorgeous night in the Black Forest or is the treatment giving me added energy or is my thyroid medicine starting to work or all of the above? It will be interesting to see how my energy level is in the next few days to month and to see if I feel this good every day. I don't want to jinx the fact that just maybe I am starting to feel some real improvements. 

Friday, July 3, 2009

Soaking & Floating in Bad Wildbad

Palais Thermal – Badepalast is an incredibly beautiful spa found in the heart of the town of Bad Wildbad. The architecture, old hand painted tiles, bath fixtures, various mineral pools, rooms and stained glass windows are so incredibly beautiful and unique that you get the feeling that you are in a special timeless healing sanctuary.

 

Unfortunately we found the staff not exactly helpful friendly or healing. We were removed from the sauna for the crime of wearing our bathing suits. We did not know we were breaking any rules because the front desk had only told us clothing was optional. An old man went and told a staff member about our crime of harboring swimsuits. The staff member came and told us we had to get out of the sauna because “Rules are rules”. It is still worth spending a relaxing afternoon there soaking in the various sized ornate pools. The saunas are also super relaxing and they use different aromatherapy oils in the different saunas.

 

http://www.badwildbad.eu/index.cfm?fuseaction=spas&rubrik=palaisthermal_en

 

Vital Therme: Thermal Spa

 

http://www.badwildbad.eu/index.cfm?fuseaction=spas&rubrik=thermalspa

 

 

Vital Therme is my favorite place in Bad Wildbad to go to float and soak in the mineral pools because the views of the mountains are incredible and the atmosphere is much mellower than at the Palais Thermal – Badepalast and the outdoor pools at Vital Therme are a nice place to float relax or sun. There is also an eating area set up with tables and there is a nice upscale grocery store where the bus drops you off where you can pick up freshly made deli salads for lunch and water which is important to purchase because the spa only has bottled water to drink that you purchase from a machine which runs out.

 

Both spas are found in the town of Bad Wildbad which is just a short bus and train ride or just bus ride (depending on the time of day you go) away from the Klein guesthouse in Dobel.

 

The town of Bad Wildbad is incredibly charming and quaint. The views of the mountains in Bad Wildbad are worth the trip alone. You can also take a tram up the mountainside in Bad Wildbad and there are hiking trails and a restaurant at the top with of course more good views. We have yet to take the tram up the mountain but if I have time before I leave for the USA I would like to.

 


Wednesday, July 1, 2009

Treating in Germany

The photon infrared light treatment is done with homeopathic nosodes taped about two plus inches above the belly button. The nosodes contain an imprint of the diseases the photons are to kill off to assist in clearing them from the body (in my case Lyme disease to start with).

Later I will probably use my own blood in an tiny glass vial instead of the nosodes because the MD told me your own blood contains all the diseases you would want to clear from your body for example co-infections and in my case EBV.  The nosodes or blood vile instructs the photons what to work on.

Here is the definition of a nosode: (in homeopathy) a preparation of substances secreted in the course of a disease, used in the treatment of that disease.

Dr. Woitzel warned me that stress can make someone's Lyme disease symptoms return after a patient has already treated Lyme disease with the Bionic 880 successfully. He said if symptoms return after completing treatment then you must do two more Bionic treatments to help put the disease back in check.

For Bionic 880 treatment in Germany the patient is put in a curtained booth with a Bionic 880 infrared light machine (the same machine NASA is experimenting with). A glass pitcher of water is left next to the machine for drinking and a piece of paper with a semi stick figure of the points the patient is suppose to shine the infrared light on by holding the paddle of the machine on the skin at a specific location.

The machine is programmed as to the frequencies the MD wants the patient to use and the machine stops sending light after you hold the paddle to each different location. The ten locations to apply the infrared light to are drawn on a stick figure on a piece of paper. The programmed amount of time I have been using per location/point has been 320 seconds (about 5 minutes). For each new point you press the start button again. The amount of seconds you are to use is already programmed into the machine by a medical tech beforehand and the machine makes a sound when you complete a point. If you are treating at home you would program the amount of time into the machine to use the light head on each point before you begin a treatment along with the frequency you intended to use. 

The doctor told me he likes patients to use energy testing when working at home or with another practitioner to figure out which frequency to program the machine with. You can use stronger or lower frequencies as needed.

An example of where we were told to hold the light head/paddle is to each ear like one would hold a telephone, to the very top of the head, and to the forehead.

I was given ten different locations to hold the paddle with the infrared light against my skin. You start on the right side. For example first you hold the paddle (light head) against the inside of the right wrist and then the left wrist. The machine stops when you have held the paddle long enough in each position and then you are instructed to drink a glass of water before treating the next point.

After I complete my Bionic 880 treatment I am always given a ozone blood infusion by a medical tech. Using an IV they take your blood out mix it with ozone and then shake the blood and ozone together and then the blood is delivered back into the patient by the same IV.

Not all patients are given ozone infusions. The doctor decides on the first appointment which patient receives what treatment and what IV’s. He used his Biocom 2000 (a machine used for energy testing) to see what minerals etc. to add to my magnesium IVs. He also could tell by testing with his Bicom 2000 that I have had Lyme disease for over 20 years and that I also have the co-infections of Bartonella and Babesia and active Epstein Bar Virus but that my Lyme disease is worse than my co-infections and EBV The machine also told him from what I could understand that Lyme disease had taken 80% of my energy. No wonder fatigue and lack of stamina are currently some of my worst symptoms.

The IVs assist with the detoxing process after killing things off with the Bionic 880 so that the patient does not have too bad of a herx reaction. 

My blood looks very dark when it is taken out for the ozone infusions and then lighter when mixed with the ozone before it is returned. As the days of treatment progress hopefully the patient’s blood becomes lighter and healthier in appearance. Mine is still dark but is said to be lighter than when I first arrived at the doctor’s office for treatment on June 18.

After the ozone IV I am then given a magnesium zinc IV with some homeopathics mixed in along with some bicarbonate of soda. Someone posted on a Lyme forum that bicarbonate of soda is used to make the patient's body more alkaline then acid. I usually feel slightly better right after the magnesium IV but rather tired by the time I arrive home from the doctor’s office.

I had my fourth treatment this Monday and receive my fifth treatment tomorrow on Thursday.

People keep asking me how I am feeling and if I am herxing or having die off. If I am herxing it is very minimal and perhaps limited to night sweats, I did just start having night sweats a few weeks before I left the USA when I drank some Q-tonic and it kicked out some babesia symptoms so it is difficult to say for sure that the Bionic 880 is causing my night sweats. My guess is that it is. Another person told me they had night sweats as well when doing the treatment here in Germany.

“The Herxheimer reaction (also known as Jarisch-Herxheimer or Herx) occurs when large quantities of toxins are released into the body as bacteria (typically Spirochetal bacteria) die, due to antibiotic treatment or rapid detoxification.”

I am not feeling worse than before I left the USA. I know some patients do feel very sick for a bit during treatment but I have no complaints along those lines.

I did feel very ill on the tiring long flight here from the stress and experience of traveling (flying seems to make me always feel much worse) so when I arrived I was having migraine pain and was feeling nauseous. I looked pale and was feeling much worse then my normal fatigued self.

I felt like I really needed some extra oxygen on the flight to Germany yet did not want to ask for some and cause a scene. The flight was already difficult enough with a young boy having seizures. Luckily there were two MD’s on the flight. The wife of one at one point told me if they did not find seizure meds that we would have had to make an emergency landing. Luckily more than one passenger did just happen to have seizure meds with them.

The flight attendants where snarly and anything but friendly and pretended they were out of bottled water in our section when they were not. Thanks United I will remember never to fly your “Friendly” skies ever again. I had wanted to fly Lufthansa. We also had young children sitting behind us who kicked the back of our seats all the way to Frankfurt even after the flight attendant asked them to stop.

I am told I am looking much better then when I first arrived here but after that flight from hell anyone would be looking better. I do think I am perhaps feeling a bit better then before I left the USA.

If I am feeling better at this point in time it is still difficult to measure how much because I am not home and doing the things that normally create fatigue and lack of stamina like driving for 35 or 50 minutes to go to the dentist or grocery shopping or driving even further to see my Lyme literate chiropractor. One person told me they did not feel any large improvements until after treatment #4. Also Dr. Woitzel just recently started me on thyroid meds. Please if you have Lyme disease and your LLMD has not tested your thyroid recently request a test. I had to ask for one this year in the USA and Dr. Woitzel retested me when I arrived.

They test your thyroid in Germany by taking your blood and then having you sniff some sort of spray and then they re-test your blood again 45 minutes later after taking some more. My test just like my last one in the USA came back reporting that my thyroid is low. Dr. W. was surprised my healthcare practitioner in the USA had not given me anything for my thyroid.

I am hoping that I will see more noticeable improvements before I return home but so far I am glad I came. I also received one spinal adjustment from the MD here as well.

I have been enjoying the mineral pools in the nearby town of Bad Wildbad. It is a bus or bus and train ride from the guesthouse in Dobel and a very quaint town with incredibly gorgeous views from the mineral pool of the mountains. I like the fact that mineral pools help one detox by pulling out toxins while also adding back in good minerals. I have been using the sauna at the mineral pools as well to help with detox. I find afternoons in Bad Wildbad very healing and relaxing. We have been enjoying the Vital Therme baths in Bad Wildbad but there is another Thermal Spa there that is to reopen soon we would also like to try called Palais Thermal. Floating around in and detoxing in mineral pools always helps me sleep better.

Germany is super beautiful and the Black Forrest lovely and full of wonderful hiking trails. There are many trails within close range of the guesthouse. Tonight I walked down a paved road and watched 7 beautiful horses eating their dinner while the sun was sinking into the horizon like a glowing orange ball. It was so beautiful outside I really did not want to come inside but had a short skirt on and was getting chilly.
The good news is the doctor in Germany told me he may be going to California at some point to help start a clinic there with some other Lyme literate MDs.

I have recently added a donation button to my blog. If you have learned anything from my blog or enjoyed reading my blog & feel so inspired please donate. Any size donation is welcome & can help me with the cost of supplements & will be greatly appreciated. I would love to say I am thriving financially. Instead I will say after going undiagnosed for years & then after having to pay 99% of my costly treatment out of pocket right now any & all donations would be greatly appreciated.



Another super easy way to help me financially is to use my Amazon link when purchasing anything from Amazon. It is located on the upper right hand side of this page. There are no extra charges when you use it. Also please ask your friends & family to use my Amazon link as well. I appreciate your support!!